TY - JOUR
T1 - A test of faith? Attitudes of ultraorthodox Jewish parents of children with down syndrome toward prenatal testing
AU - Nov-Klaiman, Tamar
AU - Raz, Aviad E.
AU - Hashiloni-Dolev, Yael
N1 - Funding Information:
We are very thankful to all the participants of this study for sharing their insights and experiences. We are grateful to the German Research Foundation (DFG) for funding this work as part of the comparative research project ‘Meanings and Practices of Prenatal Genetics in Germany and Israel’ (PreGGI) #RE 2951/3‐1 and to our project partners, Christoph Rehmann‐Sutter, Christina Schües, Hannes Foth and Stefan Reinsch.
Publisher Copyright:
© 2022 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2022/1/1
Y1 - 2022/1/1
N2 - The Haredi (ultraorthodox Jewish) community in Israel presents distinct views on disability and prenatal testing compared to the pro-testing attitudes of the Israeli general public. Based on qualitative analysis of semi-structured interviews with Haredi parents of children with Down syndrome, this study explores the interplay between their personal experiences and community norms in the creation of views on disability and pregnancy management. The experiences of life with disability carry varied positive and negative aspects, for both secular and religious parents. However, while this variability sometimes led to re-consideration (for better or worse) of views on disability and prenatal testing among secular parents, we demonstrate that parenting a child with disability did not change the views of Haredi parents regarding the futility of prenatal testing and the value of disability. For them, the Haredi model of disability remained the dominant framework through which life is experienced.
AB - The Haredi (ultraorthodox Jewish) community in Israel presents distinct views on disability and prenatal testing compared to the pro-testing attitudes of the Israeli general public. Based on qualitative analysis of semi-structured interviews with Haredi parents of children with Down syndrome, this study explores the interplay between their personal experiences and community norms in the creation of views on disability and pregnancy management. The experiences of life with disability carry varied positive and negative aspects, for both secular and religious parents. However, while this variability sometimes led to re-consideration (for better or worse) of views on disability and prenatal testing among secular parents, we demonstrate that parenting a child with disability did not change the views of Haredi parents regarding the futility of prenatal testing and the value of disability. For them, the Haredi model of disability remained the dominant framework through which life is experienced.
KW - Down syndrome
KW - Israel
KW - Ultraorthodox (Haredi) Jews
KW - parenthood
KW - prenatal testing
KW - religion
UR - http://www.scopus.com/inward/record.url?scp=85128917516&partnerID=8YFLogxK
U2 - 10.1080/09687599.2022.2070059
DO - 10.1080/09687599.2022.2070059
M3 - Article
AN - SCOPUS:85128917516
JO - Disability and Society
JF - Disability and Society
SN - 0968-7599
ER -