Correlates of well-being among caregivers of long-term community-dwelling stroke survivors

Rachel Dankner, Yaacov G. Bachner, Gary Ginsberg, Arnona Ziv, Hadar Ben David, Dalit Litmanovitch-Goldstein, Gabriel Chodick, Ran Balicer, David Tanne, Dan Greenberg

Research output: Contribution to journalArticlepeer-review

21 Scopus citations


Although caregiving for stroke survivors is usually long-term, most studies on caregivers have generally involved only the first year following the event. We assessed and compared the long-term level of well-being measures among stroke survivors and their caregivers at more than 1 year following the stroke event and examined the associations between well-being, survivors' characteristics, and caregiver burden. We interviewed a convenience sample of 51 community-dwelling stroke survivors, at least 1 year after the last stroke event, and their primary caregivers. Disability of survivors was assessed using the Barthel index and the modified Rankin Scale; health-related quality of life by the SF-36 questionnaire; and depression and anxiety using the Hospital Anxiety Depression Scale. Caregivers filled the SF-36 questionnaire, Hospital Anxiety Depression Scale questionnaire, and the Zarit Burden Interview, which assesses caregiver burden. Caregivers reported low levels of health-related quality of life and high levels of burden, anxiety, and depression. Caregivers' anxiety level was higher than that of the survivors (7.7±5.1 vs. 5.8±4.5, respectively; P=0.02). Anxiety was the only characteristic of caregivers that was associated with overall caregiver burden. Our study suggests that there is a spillover effect of the disease on stroke patients' primary caregivers. Intervention programs for caregivers should focus on their mental state and address their specific needs.

Original languageEnglish
Pages (from-to)326-330
Number of pages5
JournalInternational Journal of Rehabilitation Research
Issue number4
StatePublished - 1 Jan 2016


  • Keywords: anxiety
  • Zarit Burden Interview
  • caregiver
  • dependence
  • depression
  • disability
  • health-related quality of life
  • stroke

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation


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