IBD patients need in health quality of care ECCO consensus

Margarita Elkjaer, Gabrielle Moser, Walter Reinisch, Dana Durovicova, Milan Lukas, Boris Vucelic, Vibeke Wewer, Jean Frederic Colombel, Mary Shuhaibar, Colm O'Morain, Patrizia Politi, Selwyn Odes, Tomm Bernklev, Tom Øresland, Inna Nikulina, Elena Belousova, Ingrid Van der Eijk, Pia Munkholm

Research output: Contribution to journalArticlepeer-review

51 Scopus citations


Introduction: Inflammatory bowel diseases (IBD) is a lifelong disorder with increasing incidence and prevalence. IBD primarily affects young people's productivity in addition to direct and indirect costs. The chronic nature of the disease and the patients' requirement of frequent and easy access to the Health Care providers regarding lifelong medication, social and psychological support and regular follow-up in out-patient clinics are important considerations to address. Aim and methods: To define IBD patient needs in Quality of Health Care (QoHC) in Europe based on up- to date available evidence. The working group consisted of doctors, nurses and patient organizations from 12 European countries and Israel. Pub Med searching was performed as defined in the Delta Method. Each recommendation was graded (RG) in accordance with level of evidence (EL) based on Evidence Based Medicine, Oxford Centre. During UEGW 2007 the group reconvened to agree on the final version for each chapter of guideline statement. Results: Pub Med search led to 6 RCT, 7 reviews, 63 original articles, but no meta-analysis regarding "Information"; "Education"; "Primary Care", "Quality of life", "Psychological help" and "Benchmarking of Health Care systems" in IBD. Seven ECCO statements have been worked out. Conclusion: Evidence-based medicine in QoHC is limited. It is concluded that optimizing QoHC by "information"; "education", "benchmarking" and "psychological analysis" helps the patient to understand the disease and comply with its therapy, increasing QoL, reducing depression and anxiety. Future aspects regarding more evidence-based science and optimization of QoHC in IBD throughout Europe have been proposed.

Original languageEnglish
Pages (from-to)181-188
Number of pages8
JournalJournal of Crohn's and Colitis
Issue number2
StatePublished - 1 Jun 2008


  • ECCO consensus
  • IBD patients need
  • Quality of Health Care

ASJC Scopus subject areas

  • Gastroenterology


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