Information and decision support needs: A survey of women interested in receiving planned oocyte cryopreservation information

the Eggsurance Collaborative Group

    Research output: Contribution to journalArticlepeer-review

    3 Scopus citations

    Abstract

    Purpose: Identifying the information and decision support needs of women interested in receiving planned oocyte cryopreservation (POC) information. Methods: An online survey of Australian women, aged 18-45, interested in receiving POC information, proficient in English, with internet access. The survey covered POC information sources, information delivery preferences, POC and age-related infertility knowledge (study-specific scale), Decisional Conflict Scale (DCS), and time spent considering POC. Target sample size (n=120) was determined using a precision-based method. Results: Of 332 participants, 249 (75%) had considered POC, whilst 83 (25%) had not. Over half (54%) had searched for POC information. Fertility clinic websites were predominately used (70%). Most (73%) believed women should receive POC information between ages 19-30 years. Preferred information providers were fertility specialists (85%) and primary care physicians (81%). Other methods rated most useful to deliver POC information were online. Mean knowledge score was 8.9/14 (SD:2.3). For participants who had considered POC, mean DCS score was 57.1/100 (SD:27.2) and 78% had high decisional conflict (score >37.5). In regression, lower DCS scores were associated with every 1-point increase in knowledge score (-2.4; 95% CI [-3.9, -0.8]), consulting an IVF specialist (-17.5; [-28.0, -7.1]), and making a POC decision (-18.4; [-27.5, -9.3]). Median time to decision was 24-months (IQR: 12.0-36.0) (n=53). Conclusion: Women interested in receiving POC information had knowledge gaps, and wanted to be informed about the option by age 30 years from healthcare professionals and online resources. Most women who considered using POC had high decisional conflict indicating a need for decision support.

    Original languageEnglish
    Pages (from-to)1265-1280
    Number of pages16
    JournalJournal of Assisted Reproduction and Genetics
    Volume40
    Issue number6
    DOIs
    StatePublished - 1 Jun 2023

    Keywords

    • Elective egg freezing
    • decision making
    • decision support
    • fertility preservation
    • information needs
    • planned oocyte cryopreservation

    ASJC Scopus subject areas

    • Genetics(clinical)
    • Genetics
    • Obstetrics and Gynecology
    • Reproductive Medicine
    • Developmental Biology

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