TY - JOUR
T1 - [Telling the truth to Alzheimer and dementia patients in the early stages of the disease].
AU - Ilan, Sara
AU - Glick, Shimon
AU - Jotkowitz, Alan Bruce
PY - 2012/1/1
Y1 - 2012/1/1
N2 - Disclosing the diagnosis of Alzheimer's disease to the patient is emotionally difficult and ethically challenging. Arguments against telling the truth include: diagnostic uncertainty, patient's inability to understand the diagnosis, patient's unwillingness to recognize the diagnosis, potential negative social implications, unpredictable emotional reactions and losing hope. Arguments in favor of truth telling include: patient autonomy, relations with the physician based on trust, emotional adaptation, future planning and support for the patients and their family. Current research in Western countries indicates that most patients of all ages wish to know their diagnosis, whereas many relatives and physicians believe that they should conceal it from the patient. Many physicians experience difficulties in delivering the diagnosis to the patient. Studies show that less than half of them reveal the diagnosis to the patient and rarely discuss the prognosis, even though they convey this information to the relatives. Patients' reactions to the diagnosis of Alzheimer's disease is influenced by the way it is delivered, the patients' emotional vulnerability, coping style and past experience with dementia. Reactions vary from denial, anger, fear, sorrow and depression to positive coping. The proper question is how to disclose the diagnosis and not whether it should be told. Disclosing the diagnosis is a complicated and dynamic process that should begin when there is suspicion of a cognitive decline. It demands physician sensitivity flexibility and discretion. Discussing the diagnosis in time enables the patient to be involved in treatment decisions and planning his or her future.
AB - Disclosing the diagnosis of Alzheimer's disease to the patient is emotionally difficult and ethically challenging. Arguments against telling the truth include: diagnostic uncertainty, patient's inability to understand the diagnosis, patient's unwillingness to recognize the diagnosis, potential negative social implications, unpredictable emotional reactions and losing hope. Arguments in favor of truth telling include: patient autonomy, relations with the physician based on trust, emotional adaptation, future planning and support for the patients and their family. Current research in Western countries indicates that most patients of all ages wish to know their diagnosis, whereas many relatives and physicians believe that they should conceal it from the patient. Many physicians experience difficulties in delivering the diagnosis to the patient. Studies show that less than half of them reveal the diagnosis to the patient and rarely discuss the prognosis, even though they convey this information to the relatives. Patients' reactions to the diagnosis of Alzheimer's disease is influenced by the way it is delivered, the patients' emotional vulnerability, coping style and past experience with dementia. Reactions vary from denial, anger, fear, sorrow and depression to positive coping. The proper question is how to disclose the diagnosis and not whether it should be told. Disclosing the diagnosis is a complicated and dynamic process that should begin when there is suspicion of a cognitive decline. It demands physician sensitivity flexibility and discretion. Discussing the diagnosis in time enables the patient to be involved in treatment decisions and planning his or her future.
UR - http://www.scopus.com/inward/record.url?scp=84873727548&partnerID=8YFLogxK
M3 - Article
C2 - 23367749
AN - SCOPUS:84873727548
VL - 151
SP - 537-540, 555
JO - Unknown Journal
JF - Unknown Journal
IS - 9
ER -