Use of patient-reported outcome measures in the surgical treatment of hidradenitis suppurativa: A systematic review

Anouk A.E. Claessens, Tert C. van Alphen, Oren Lapid, Maarten M. Hoogbergen, Zachri N. Ovadja

Research output: Contribution to journalReview articlepeer-review


BACKGROUND Surgery is considered to be the best treatment for recurrent hidradenitis suppurativa (HS). Although it is necessary to assess the effect on health-related quality of life (HR-QoL), patient-reported outcome measures (PROMs) are scarce and heterogeneously used in the literature about the surgical treatment of HS. OBJECTIVE The aim of this study was to provide a review of the complete literature for different PROMs used in the surgical treatment of HS and to assess their methodological qualities. METHODS A systematic literature search of PubMed, Medline, Cochrane, CINAHL, and Embase with an assessment following the COnsensus-based standards for the Selection of health status Measurement INstrument criteria. RESULTS The search identified 218 articles, with the inclusion of 6 studies for analysis. Identified PROMs were as follows: the Dermatology Life Quality Index (DLQI), the Derriford Appearance Scale-24 (DAS-24), and the Work Productivity and Activity Impairment (WPAI). These non–disease-specific PROMs seem to have poor results concerning development and content validation. CONCLUSION The DLQI, WPAI, and DAS-24 are generic PROMs with poor methodological qualities for PROM development and content validation. Hidradenitis suppurativa–specific instruments are not used in available studies because they have been developed recently and, therefore, partially validated. More research is needed to further investigate methodological qualities of HS-specific instruments.

Original languageEnglish
Pages (from-to)411-417
Number of pages7
JournalDermatologic Surgery
Issue number4
StatePublished - 1 Apr 2022
Externally publishedYes

ASJC Scopus subject areas

  • Surgery
  • Dermatology


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